I’m going to be raw here. My boys aren’t sleeping well. They are afraid to go to sleep. They are afraid they aren’t going to wake up. They need someone with them and even when they do manage sleep they are restless and frightened and sad. How do I comfort them and make them understand that sleep won’t hurt them when all they know is Noah went to sleep and never woke up?! My poor kids, who also loved Noah with every inch of their being, are struggling with managing emotions that I, as an adult can’t even comprehend and explain. This is the absolute worst pain I could feel…

It’s with the heaviest hearts we must say that our beautiful Noah has passed away unexpectedly in his sleep this morning. John and the EMT tried everything but were unable to save him. We are shattered. The last 6 years and 2 months was not long enough. We wanted more. We needed more. We thought we had more but that wasn’t the plan and our lives will forever be missing the years we didn’t get. But the years we did get were amazing. Sure it seemed daunting and some times was really hard but it was worth it. It was worth every.single.second. He had the best life and felt love…