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Repeat after me
Delay doesn’t mean can’t or won’t. It just means delay. Delay doesn’t mean can’t or won’t. It just means delay. Delay doesn’t mean can’t or won’t. It just means delay. *deep breaths* Just keep working and loving. Whatever will be will be. 🙂
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What’s in a name?
Everything. Absolutely everything. A diagnosis. A label. Finality. Funding. Acceptance. A common bond. We officially got the 100% diagnosis of Noah yesterday. No more clinical diagnosis. There is no refuting it by anyone. I knew it was going to be an almost bittersweet phone call and I expected to have mixed emotions. But I had very intense emotions that I wasn’t counting on. It was like the rug was pulled out from under me once again. I was hysterical for a brief moment. But, I knew this was what he had before even leaving the hospital. I was prepared to fight for the same diagnosis if the genetic testing came…
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What Should Have Been
April 1st. The day I had been eagerly anticipating for what felt like eternity. The day was quickly filled with nervous anticipation and a flurry of phone calls being made trying to make arrangements. This was happening. It was the day I was going to become a mother of two. I was ecstatic. J was over the moon. Eli knew something was about to change and was so cute and excited and he didn’t even really understand the reason. But he knew something special was going to happen! One hour I was home with my oldest son and 1.5 hours later I was holding my newest son in my arms.…
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5 Months Old
Today my N turned 5 months old! 5 months! Where is the time going? He has had a very busy couple weeks. It’s like all of a sudden he wants to start to “catch up” and do the things other babies his age take for granted and do. He laughs and laughs when he’s tickled. He began opening his mouth and chewing on his fingers. He’s opening his mouth more to cry. He took a soother and held it in his mouth for 1 minute. He may not have sucked much but he didn’t push it right back out like he always did before. His head control is getting so…
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The Special Mother
The Special Mother by Erma Bombeck Did you ever wonder how mothers of disabled children were chosen? Somehow I visualize God hovering over the earth selecting his instruments of propagation with great care and deliberation. As He observes, He instructs His angels to make notes in a giant ledger. “This one gets a daughter. The Patron saint will be Cecelia” “This one gets twins. The Patron saint will be Matthew” “This one gets a son. The Patron saint…..give her Gerard. She’s used to profanity” Finally He passes a name to an angel and smiles. “Give her a disabled child”. The angel is curious. “Why this one God? She’s so happy”…