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I would have made a deal with the devil himself
Since my last post, things got crazy in the A household. We were finally finding our routine, our normal after introducing another member to our family. And N threw us yet another curveball. A big scary curveball. I turned to leave the room to spend some time with E before his nap and as I got to the door something told me I needed to turn around. To get closer to my son. That’s when I noticed something was horribly wrong. *enter 911* I thought I knew what pain was. I didn’t. Pain is holding your child and not knowing what the future is going to hold and crying out…
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Mark Twain was a wise man
“Kindness is the language which the deaf can hear and the blind can see” ~Mark Twain
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Fearfully and wonderfully made
In the past almost 3 months, I’ve learned more about the medical system than I ever cared to know. I know so many procedures, abbreviations, big fancy-smanchy words I never dreamed of knowing. Let alone being able to spell them. This has been intense crash course in life and brought a whole new level to motherhood. But one thing I must admit I hate is the wording medical and non-medical people alike use when describing babies that aren’t ‘typical.’ Words such as wrong, ideal, normal, the dreaded “r” word, and the list could go. There is nothing “wrong” with my littlest man. He is exactly how he was made. He…
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Stranger Things have Happened
For some reason I decided to read through my pregnancy journal yesterday. There were many things I already didn’t remember and one especially stood out for me. It was an entry a couple days before I found out I was expecting N. I was having a reoccurring dream that I called so bizarre. In the dream I was “sort of” blind and dizzy. Say whuuuuttt. I commented on how in the dream I was unable to wake up and be my normal self, that this was my life. I just commented on how weird it was. I still don’t remember having that dream but there must have been something that…
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Welcome to Holland
Welcome to Holland by Emily Perl Kingsley “I am often asked to describe the experience of raising a child with a disability – to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It’s like this…… When you’re going to have a baby, it’s like planning a fabulous vacation trip – to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It’s all very exciting. After months of eager anticipation, the day finally arrives. You pack your bags…