-
Tomorrow
As I sit her sandwiched by my two amazing boys on the eve of N’s surgery. I don’t know what to think about it all. I’m so very excited to be getting rid of that blasted NG tube and having full access to his cheeks! That’s something I haven’t had since the first day he was born. But, at what cost? I’m losing his perfectly smooth, soft, and kissable belly. I’m going to watch his body create a scar and heal around a foreign object that goes into his stomach. He will never be scar free again. His soft baby skin will have a cut and scar. I know it’s…
-
Big 24 hours in the A household!
Warning: Brag post ahead. N is on fire the past couple days. We’ve seen it building over the past couple of months & especially this past month. It’s like a switch is going off. He’s reaching, batting, examining anything and everything he can get his hands into. He has head control (the majority of the time). He tries to pull himself up from reclining against my chest to sit (strength isn’t there but he’s trying). He turns 180° when you’re not looking. He is amazing me in every way possible all the time. Earlier in the week during his assessment by the developmental therapist he would turn to bells jingling.…
-
Life Lessons
It’s true what they say, when big things happen it shows you who your friends are. In the early days, everyone cares and are constantly sending well wishes and checking in then slowly over time they start to fade away. Ok, it’s not all that slowly. They return to their own lives blissfully unaware of the earth shattering blows I received almost daily. Rightfully so because I don’t expect to be the centre of the world and people have to get back to their regularly scheduled programming. You come to expect the natural pattern and flow of things. The influx of support then the slow retreat until you are left alone…
-
Doctors, Therapists, & Nurses – Oh my!
We had made it. It was a month of the saddest, most confusing, exhausting, love filled days I could ever had imagined and it was over and we were heading home, just in time for Mothers’ Day. But I wouldn’t have made it through without the support of friends, family, nurses, and doctors. The outside support was outstanding and what got me through day to day, especially those days where I was away from J & E and all I had were the nurses, our amazing Ped. at Children’s, and Skype. Just recently I’ve been hearing a lot of complaints and regrets about Doctors and nurses in the early days…
-
Did you know I have a sighted child?!?
Because I did. I do. But hearing those words come out of the opthamologists mouth last Thursday was enough to make J and I well up. Numerous times. We knew Noah could see and his vision has really developed in the past month! He is a rockstar afterall! But just hearing it from his specialist validated what we have been seeing at home. But she kept saying, he’s definitely sighted and everything he’s doing is typical for a 6 month old. I should have recorded it so I could listen to it at anytime. Typical. Sighted. Music to my ears. (Sure he’ll have some deficits & will eventually need glasses…