As I mentioned the other day, we got more pieces to Noah. Those pieces are kind of scaring me. All is fine and great with him now and hopefully will stay that way. They are just really concerned about what will happen if he needs to be put on a ventilator, has another episode like in July, or when he gets sick. Our hospital doesn’t have enough experience with something like this to keep our little guy safe. To hear all the specialists telling us that if he has an episode (i.e. caused by a bout of sickness) before they figure this out he has a high possibility of dying…