• 2012,  reflection

    What’s in a name?

    Everything. Absolutely everything. A diagnosis. A label. Finality. Funding. Acceptance. A common bond. We officially got the 100% diagnosis of Noah yesterday. No more clinical diagnosis. There is no refuting it by anyone. I knew it was going to be an almost bittersweet phone call and I expected to have mixed emotions. But I had very intense emotions that I wasn’t counting on. It was like the rug was pulled out from under me once again. I was hysterical for a brief moment. But, I knew this was what he had before even leaving the hospital. I was prepared to fight for the same diagnosis if the genetic testing came…

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