Today is World Rare Disease Day. CHARGE syndrome is on that list. I hadn’t heard of it before our diagnosis, like almost every one else. It’s scary to be told your child has something no one even knows the name of. It gives you a feeling of being alone that I can’t explain. That is until you find your people. The other people in world who “get it”. And there are a lot of “us”. CHARGE syndrome affects 1 in 10,000 births worldwide. Visit Noah’s News and the CHARGE syndrome foundation for more information. There are over 7000 distinct types of rare diseases and syndromes, and more are constantly being discovered. There…