It’s that time of year. The 2015 CHARGE Syndrome Conference is quickly approaching and we are really hoping to get the whole family to the conference because it’s benefits are not just for Noah and not just to us as parents, but to his brothers as well. It’s the one place you see feel no judgement, you see no looks of pity. You just feel warmth and belonging. I have never felt something like it since the diagnosis. I feel weird fundraising for it but it might just not be possible to get us all there without some support. This is a priceless experience. Thank you from all of us.