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If you could change one thing about your life right now…
…what would it be? Good question. I have a ton of answers if I really think about. But at the same time, do I really want those things to change. I could wish about changing our finances. Where I’m living. My extreme shyness, which I’m told is probably not shyness at all but a social anxiety disorder. Health for family members. My weight. How disconnected I am from friends. The fact that I’m a picky eater. But honestly, first thought goes to changing our youngest son’s diagnosis. I would take those years of therapies away for him in an instant. The hurdles he is going to (and will) overcome. The ignorance he’s going…
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More pieces
As I mentioned the other day, we got more pieces to Noah. Those pieces are kind of scaring me. All is fine and great with him now and hopefully will stay that way. They are just really concerned about what will happen if he needs to be put on a ventilator, has another episode like in July, or when he gets sick. Our hospital doesn’t have enough experience with something like this to keep our little guy safe. To hear all the specialists telling us that if he has an episode (i.e. caused by a bout of sickness) before they figure this out he has a high possibility of dying…
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Disconnect
I feel so disconnected from what’s going on in the world. I haven’t had much time or a great connection to read the news app, blogs, twitter, or even facebook. (I’ve been trying my best to keep everyone updated on N though) I hope I’m not missing anything huge in the world. Someone please tell me if there is anything major going on that I should be following just in case I’m living in my bubble and completely oblivious. I don’t want to feel like a dork and have no idea what people are talking about. I’m tired. I want to write more but I can’t. I don’t have the…
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Glad that’s over….time for sleep
I’m tired. This day is all but finished. My bed is calling. Loudly. I’ll do a quick update for those of you who missed my random FB posts. (BTW, phones don’t work in Children’s unless you hold it just right or are by a window so all I have is wireless. Hence the updates through the internet). Noah was is a rockstar! He’s been sleeping pretty much since coming out of surgery, except to fight assessments and he really despises the O2 tubes up his nostrils. And he really threw a fit when his room got so warm. But once they listened to me about how much he hates being…
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I will try
I will try to update as the day goes on and I will as long as my phone as internet. Some areas of the hospital my service is hit or miss. But it’ll just be easier to write the masses once instead of message after message and call after call. Maybe it will give me something to do while trying to pass the time. So stayed tuned. 10.5 hours and counting…. ==================================== eta: Sorry I was unable to update here as I hoped. Service in the hospital blows. I didn’t get wireless until everything was pretty much all said and done.