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I will try
I will try to update as the day goes on and I will as long as my phone as internet. Some areas of the hospital my service is hit or miss. But it’ll just be easier to write the masses once instead of message after message and call after call. Maybe it will give me something to do while trying to pass the time. So stayed tuned. 10.5 hours and counting…. ==================================== eta: Sorry I was unable to update here as I hoped. Service in the hospital blows. I didn’t get wireless until everything was pretty much all said and done.
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Tomorrow
As I sit her sandwiched by my two amazing boys on the eve of N’s surgery. I don’t know what to think about it all. I’m so very excited to be getting rid of that blasted NG tube and having full access to his cheeks! That’s something I haven’t had since the first day he was born. But, at what cost? I’m losing his perfectly smooth, soft, and kissable belly. I’m going to watch his body create a scar and heal around a foreign object that goes into his stomach. He will never be scar free again. His soft baby skin will have a cut and scar. I know it’s…
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Big 24 hours in the A household!
Warning: Brag post ahead. N is on fire the past couple days. We’ve seen it building over the past couple of months & especially this past month. It’s like a switch is going off. He’s reaching, batting, examining anything and everything he can get his hands into. He has head control (the majority of the time). He tries to pull himself up from reclining against my chest to sit (strength isn’t there but he’s trying). He turns 180° when you’re not looking. He is amazing me in every way possible all the time. Earlier in the week during his assessment by the developmental therapist he would turn to bells jingling.…
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Free time?! What’s that?!
This is my life. This calendar is my lifeline, plus the monotony of day to day life that doesn’t need to be tracked and scheduled into a calendar. Add in the feeds every 3 hours, followed by clean the feeding pump & getting the next feed prepped, keeping N positioned to avoid reflux, then doing his stretches, exercises, & at home therapies, etc. etc. We can’t forget spending some one-on-one time with E. He can’t be overlooked in all this. Where do I find the time to shower? Oh wait, I don’t many days. I’m lucky to brush my hair and teeth daily. And people wonder why I don’t have…
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Life Lessons
It’s true what they say, when big things happen it shows you who your friends are. In the early days, everyone cares and are constantly sending well wishes and checking in then slowly over time they start to fade away. Ok, it’s not all that slowly. They return to their own lives blissfully unaware of the earth shattering blows I received almost daily. Rightfully so because I don’t expect to be the centre of the world and people have to get back to their regularly scheduled programming. You come to expect the natural pattern and flow of things. The influx of support then the slow retreat until you are left alone…