• 2012,  reflection

    Life Lessons

    It’s true what they say, when big things happen it shows you who your friends are. In the early days, everyone cares and are constantly sending well wishes and checking in then slowly over time they start to fade away. Ok, it’s not all that slowly. They return to their own lives blissfully unaware of the earth shattering blows I received almost daily. Rightfully so because I don’t expect to be the centre of the world and people have to get back to their regularly scheduled programming. You come to expect the natural pattern and flow of things. The influx of support then the slow retreat until you are left alone…

  • 2012

    Doctors, Therapists, & Nurses – Oh my!

    We had made it. It was a month of the saddest, most confusing, exhausting, love filled days I could ever had imagined and it was over and we were heading home, just in time for Mothers’ Day. But I wouldn’t have made it through without the support of friends, family, nurses, and doctors. The outside support was outstanding and what got me through day to day, especially those days where I was away from J & E and all I had were the nurses, our amazing Ped. at Children’s, and Skype. Just recently I’ve been hearing a lot of complaints and regrets about Doctors and nurses in the early days…

  • 2012,  BabyA2012

    Did you know I have a sighted child?!?

    Because I did. I do. But hearing those words come out of the opthamologists mouth last Thursday was enough to make J and I well up. Numerous times. We knew Noah could see and his vision has really developed in the past month! He is a rockstar afterall! But just hearing it from his specialist validated what we have been seeing at home. But she kept saying, he’s definitely sighted and everything he’s doing is typical for a 6 month old. I should have recorded it so I could listen to it at anytime. Typical.  Sighted. Music to my ears. (Sure he’ll have some deficits & will eventually need glasses…

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